Read a letter from Dylan's Doctor
Read a an update from Dylan's Mom, April 1, 2004
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Read a letter from Dylan's Parents to JHC Read a letter from Dylan's Doctor Read a an update from Dylan's Mom, April 1, 2004 |
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Little Dylan has traveled all the way from the Netherlands to Durham, North Carolina in search of life saving medical technology and perhaps even a miracle. Dylan has Krabbe Disease, for which the only known treatment, at this time, is an unbilical cord blood translplant. Without the transplant Dylan might have lost his hearing, his sight, along with other senses and eventully become a "vegatable" (which usually happens by 2 years of age). Dylan and his family are in the States for the long haul, they cannot take the chance of taking him across the world to go home until he is well enough to withstand not only the traveling but also the bombardment of germs and other organisms that will attack his immune system along the way. JHC helps families like Dylan's with the costs of daily living that can quickly add up. His parents are not allowed to work because they are here in the states only
for medical reasons, if they were to work they could be sent back to the Netherlands and this would put Dylan's life at risk.
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